Pink Icing

Sunday, September 18, 2011

Living for today

Goodness, seems far too long since I was here, and I guess it is! As with everyone, lots of things have happened in the time since I last posted.

I tried Twitter - got very bored very quickly

I tried Facebook - I'm still trying it....

Just to catch up, my beloved Daddy died of a rare stomach cancer on March 26 2010, Mother ended up in hospital which took up most of that summer. I returned to work in the October and went down with swine flu in December, as did Darling Daughter and The Boy.

The worst was yet to come.....

After a major fit in the street when walking The Boy to school, Darling Daughter was eventually diagnosed with a rare primary brain tumour in February this year.

I can't even remember the date. That was the day our lives changed forever

It has been a whirlwind and huge roller coaster that none of us have been in control of. I shall write a detailed account of all of this. But not tonight.... And if only as a place for me to dump all the crap....

After the initial diagnosis Darling Daughter was taken into surgery for a craniotomy to take out as much of the grade 3 tumour as possible. Radical radiation therapy followed; 5 days a week for 6.5 weeks. It was intensive and the last 3 treatments left her somewhat fried and I feared what was left of her brain would be mangled. She had numerous mri scans to map the journey and activity of the vile invasion. Then the last mri and the agonising wait to hear the outcome. Had any of the treatments worked?

Last Thursday we were told that she is cancer free and they don't want to see her until 6 months time!

This is the best ever news. It's like winning every lottery, all birthday's and Christmas' rolled into one moment of pure emotion of joy.

Sadly this is a recurring tumour, it will come back. But it could be years not months and that's what we are fighting for. Right now not every moment of every day has to be about the brain tumour. We can do normal things again and have hope. Something we haven't had since February.

It's taken its toll on our little family unit. There's a lot to do and we will never be the same but we all have hope of a future for now.

My brave and beautiful daughter is incredibly brave and owns an inner strength that she still doesn't recognise.

My Father said to me close to the end of his life that I mustn't be too sad, it was the natural order of things. And he was right. What isn't right is one's children passing away before the parent. The pain of watching my adult child suffer unimaginagble pain and suffering is more than I can often bear.

That said there will be some good times ahead as we settle into the wonderful news of life regiven.

please drop by again soon....xx


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